Erin opens up about discovering Huntington's disease in her family when she was in her early 30s. She talks about her father and how his outbursts and behavioral changes, often misunderstood, were early signs of the disease. Erin reflects on her own diagnosis, the emotional burden of being gene-positive, and the delicate task of caregiving while also being a mother. We also talk about Erin’s passion for writing and storytelling, particularly her books, which focus on HD, rare diseases, and patient advocacy. She emphasizes the power of storytelling in the HD community, giving a voice to patients, caregivers, and families.

The song that Erin selected is Yer Fall by Hey Rosetta.

Seth saw how Huntington's Disease (HD) affected his mum and impacted his family. He talks about going through genetic testing aged 20 and the lack of mental health support when being told he also had HD. Whilst he may not experience symptoms yet, he shares his eagerness to take part in clinical trials, and his frustration with the pharmaceutical industry not offering trials for pre-symptomatic HD patients.

The song Seth chose is Feel So Close by Calvin Harris.